Sep. 4th, 2010 08:01 pm
denisia: (Default)
[personal profile] denisia posting in [community profile] asthma
another LJ refugee here. :) I started this community in the hopes that it would serve the same purpose as the Asthma comm on LJ; that it would give people with asthma and other respiratory conditions a place to congregate, compare notes and learn from each other.

If you're thinking of joining this community, please do! Jump right in. :)

Date: 2010-09-07 04:32 am (UTC)
killing_rose: Raven/corvid in the frozen surf (Default)
From: [personal profile] killing_rose
Over here, we've also got fucking_meds and fucking_docs; there's a bunch of good med-info in fucking_meds.

(Joined; it's a good idea and I vaguely remember liking and participating in similar comms for migraines over on lj.)

Date: 2010-09-07 04:48 am (UTC)
killing_rose: Raven/corvid in the frozen surf (Default)
From: [personal profile] killing_rose
As I recall, back when meds first opened, about four people in the same thread were bitching about those "fucking docs!" and someone said, "Hmmm..." They're both awesome places.

I'm not certain what it says about my string of docs that my last asthma doc doesn't even register on my "evil, incompetent" list. And that was the one who took over a year to explain that the reason why my asthma seemed strange was because it's cough variant.

...On the other hand, perhaps I should rant about the really amusing one who decided I couldn't have asthma because I seemed fine. I was twelve and the meds were working. Five years later after having at least 7 bouts of bronchitis and being unable to breathe for coughing, I got referred to an asthma doc. I thought she was going to teleport to where ever the old one was and strangle him. Apparently, she was displeased that I'd been unmedicated for so long.

~end babble~

Date: 2010-09-07 04:58 am (UTC)
killing_rose: Raven/corvid in the frozen surf (Default)
From: [personal profile] killing_rose
...I think that is a discussion that should be on this comm. Peak flow meters. Because I love mine, but the nurse and I disagree sharply about what baseline is and when I should worry. (And I'm a college student far away from an asthma doc; haven't had time to see her in over a year.) Clarification of such things would be awesome. Even something as simple as "should I breathe deeply when that's causing the coughing fit from hell?" because nurse says yes. I say it hurts even worse and it isn't like I can breathe once I do that.

i babble.

also, singulair works for you? really? they keep putting me back on it and it does nothing noticeable for me.
Edited Date: 2010-09-07 04:59 am (UTC)

Date: 2010-09-13 06:36 pm (UTC)
bewize: (Default)
From: [personal profile] bewize
God, Singulair has been a godsend for me. Between that and Advair, I'm pretty much a controlled asthmatic now and can even do things like run and exercise without it killing me.

But I agree that it took a while for me to notice that it was working. The only way that I really did notice was that when I quit using it, I got a lot worse.

I'm a believer now.


The DW community for asthma patients

July 2012


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