killing_rose: Abby from NCIS asleep next to a caf-Pow with the text "Goth Genius at Work" (Abby)
[personal profile] killing_rose
Dear doctor yesterday:

I'm sick. Like, we don't know what went wrong, but something went way wrong, and I finally admitted that Urgent Care was needed a week after the original "let's try and pass out" incident. You, of course, haven't actually managed to figure out what's wrong, but that's a post for another comm.

For this one, let's talk about my asthma attack in your exam room yesterday.

My body thinks it's a special snowflake when it's not sick, and it's worse about that tendency when it is.

I've had to hit my inhaler a couple times this week--after months of being mostly inhaler-free.

When I started coughing because you'd asked me to breathe deeply, my roommate went, "Oh hell, hon, did you bring your inhaler?"

Me, after having gotten round of coughing done with: "Seriously, it's like y'all expect me to be intelligent."

Roommate: "Okay, fine, after last night I should have brought one, damn it."

Doctor: "Don't worry, you're not wheezing, I don't think you need an inhaler."

Her: "Really? And what was your peak flow reading last night, babe?"

Me: "275."

Doctor: "....Still, no wheezing."

Dearest doctor: I very, very, very rarely wheeze. I just cough. I have that fun and pesky variety known as cough variant asthma, and my asthma has presented as such for over a decade. Trust me when I say, Roommate and I made faces at each other after you left the room.

syntaxofthings: ([BSSM] Jupiter Thunder)
[personal profile] syntaxofthings
So I last wrote here just over a year ago asking for suggestions about pollen. I implemented a few of your suggestions, and I'm finally seeing a specialist in allergies and asthma instead of trying to diagnose myself from 1,500mi away from my primary doctor. And, having been on asthma medications over half my life, I am curious about what asthma medications you're all on.

For daily bronchodilators, I was on Advair (varied between 100/50 and 500/50) from age 10-12 to about age 21, then I switched to Symbicort (120/4.5 until two weeks ago, 80/4.5). I don't think I was ever instructed in the correct usage of either of these until recently. I was told a few times that I could back off of these medications by taking less of it in the day; about a month and a half ago I was told that this was not the ideal way to back off of these medications because you're getting less volume of the medicine rather than less strength and it's murky territory. Since then I'm religiously taking two puffs of Symbicort twice a day. However, since I've been on long-acting bronchodilators most of my life, I don't know what other options there are to treat asthma. Possibly less severe ones. So I'm curious, what do other people take for their asthma symptoms?

I also have had albuterol for a rescue inhaler and recently switched to Xopenex.

Also for the curious, I just wrote an entry in my Dreamwidth about allergy testing and how I'm conflicted about my asthma management.
syntaxofthings: ([BSSM] Jupiter Thunder)
[personal profile] syntaxofthings
My area of the world has finally lifted the chains of winter and bloomed into lots of rain but definitely above the 40s spring, and with that has come pollen. Now I know I don't have allergies. I have tested negative again and again and again. (ETA: I say this because doctors have agreed for 10+ years that I have asthma, and are often surprised that I don't also have allergies.) But this spring, every time I step outside my chest constricts and I start coughing, which are definitely asthma-related symptoms. Every single time! And I love being outside in the spring! ;_;

No dripping nose, no itchy eyes, no allergy type of symptoms, just asthma. And like I said, I've never had this happen before. Does this sound familiar to anyone? I keep wondering if it'll go away or if I should talk to a doctor or what. It's really starting to upset me, since I have a ton of other things going on at the same time.
killing_rose: Abby from NCIS asleep next to a caf-Pow with the text "Goth Genius at Work" (Abby)
[personal profile] killing_rose
So I've got cough variant asthma, and this has not been a good week if, you know, I want to breathe between coughing. If I get one more, "OMG you're sick! Like, you must be really sick!" I will punch the next person.

Current preventative is Flovent HFA, but I'm highly considering bullying my doc into going back on Symbicort--that was effective on a regular basis; Flovent gives up about two days into me taking it.

But the rescue inhaler isn't doing much either? What the hell am I supposed to do? (Current answer: use the caffeine trick. Which is, thank gods, working.)

...And my lungs are rattling if I lie on my back for any length of time.

This is not a good week for my lungs.
denisia: (Default)
[personal profile] denisia
Peak flow meters. How long have you had one? How much importance does your doctor/caregiver place on your readings? Are you good about doing your readings every day?

My own answers: for about five years, even though I've been Dx with asthma since I was 15. I had to ask for it on my own; my doctors couldn't have cared less, unfortunately.

I'm not as good about remembering to use it as I should, sadly.

hullo!

Sep. 4th, 2010 08:01 pm
denisia: (Default)
[personal profile] denisia
another LJ refugee here. :) I started this community in the hopes that it would serve the same purpose as the Asthma comm on LJ; that it would give people with asthma and other respiratory conditions a place to congregate, compare notes and learn from each other.

If you're thinking of joining this community, please do! Jump right in. :)

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The DW community for asthma patients

July 2012

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